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Priority #7:

What are effective ways to incorporate shared decision-making with parents and children/youth hospitalized on the general paediatric inpatient unit (GPIU)?

Shared decision-making (SDM) refers to the collaborative process between patients, families, and healthcare providers in making informed care and treatment decisions that align with patient’s values, preferences, and treatment goals. SDM can be facilitated in paediatric settings by providing and exchanging information; encouraging children and parent(s) to ask questions; and encouraging the expression of preferences.

Gaps in Evidence

Evidence on SDM in paediatric care is limited, particularly for acute illnesses and in the GPIU hospital setting. Prior SDM research is limited to specific populations, such as children and youth with mental health problems, cancer, asthma, disabilities, or cystic fibrosis. Future research is needed on how to effectively incorporate SDM in GPIUs.

Directions for Future Research

  1. What tools, decision aids, and/or frameworks are available for SDM in GPIU? How are these being used to address biases and incorporate equity in GPIUs? 

  2. Does SDM improve outcomes of children cared for in GPIUs? 

  3. What is the current state of SDM in GPIUs across Canada?

  4. How are clinical situations unfolding in GPIUs with SDM? How might a SDM tool improve partnership?

Inpatient Setting

  1. What treatment options do families want explored, whether conventional, complementary, or traditional in origin?  

  2. How are handovers and rounds executed in ways that integrate SDM preferences and values from families and patients? 

  3. How does patient and family inclusion in rounds impact the knowledge and confidence of parents at discharge, and/or help families participate more competently and confidently in the child’s care?

Inclusivity

  1. How are linguistic barriers and ethno-cultural factors being incorporated and accounted for in SDM?  

  2. How can SDM be implemented for different sub-populations (e.g. patients and families with limited English proficiency)?

Experience After Discharge

  1. How can parents/caregivers be better engaged in the process of discharge?  

  2. How much do patients understand about their hospitalization and discharge?

The Top 10 Priorities

Read more about other priorities:

#1

What best practices and/or care models exist for inpatient care for children and youth with medical complexity on the GPIU?

#2

What methods of communication are most effective between patients, caregivers and health care providers on a GPIU?

#3

What are the best practices and support strategies for Indigenous parents, families and children and youth on the GPIU?

#4

How can we ensure that healthcare delivery in hospital meets the needs of children and youth with developmental disabilities on the GPIU?

#5

What are effective support strategies for parents, families, and children and youth hospitalized on the GPIU?

#6

What mental health supports can be provided to parents, families and children and youth while hospitalized on the GPIU?

#7

What are effective ways to incorporate shared decision-making with parents and children and youth hospitalized on the GPIU?

#8

What are effective strategies to mitigate the impacts of prolonged inpatient hospitalizations on the GPIU?

#9

What are effective alternatives to shorten length of stay for hospitalized children and youth on the GPIU?

#10

What are the most effective communication methods between healthcare providers on a GPIU?

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PIRN est un nouveau réseau canadien développé pour pour générer des données probantes qui amélioreront les soins et les résultats des enfants hospitalisés en milieu pédiatrique général.

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LAND ACKNOWLEDGEMENT

We would like to acknowledge the land on which SickKids operates. For thousands of years it has been the traditional land of the Huron-Wendat and Petun First Nations, the Seneca, and most recently, the Mississaugas of the Credit River. Today, Toronto is home to Indigenous Peoples from across Turtle Island. SickKids is committed to working toward new relationships that include First Nations, Inuit, and Métis peoples, and is grateful for the opportunity to share this land in caring for children and their families.

Dernière mise à jour:août 2020 par l'équipe PIRN. Créé avec Wix.com

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