Our Patient Partners
Foundational to PIRN's mission is working in partnership with children and families to understand their needs and perspectives and improve hospital care. Within our network, the voices of children and families drive research activities. Youth, parents, and patient partners are all integral members of PIRN and are directly involved in research studies and network activities, including setting research priorities for pediatric hospital care.
PIRN's Patient Engagement Strategy
Our approach to research involves meaningful and active collaboration between researchers and those with lived patient/caregiver experience (patient partners). Unlike enrolled study participants, patient partners are involved across all stages of the research process, including study design, outcomes measured, analysis and dissemination of findings. We build relationships that foster trust, respect, and collaborative partnerships.
PIRN’s Patient Engagement activities are led by Francine Buchanan and Carla Southward, who are committed to having patients and families continuously inform and shape research and advance the field of Paediatric Hospital Medicine.